Memory Moves?
Memory Moves is a Dementia awareness campaign created by caregivers and relatives of those impacted.
Did you know that dementia will impact one in two individuals either as a patient, caregiver, or family member in their lifetime? In response, we produce The Dementia Podcast, which offers in-depth coverage of dementia and its various subtypes (Alzheimer's, Vascular dementia, FTD, etc). We dive deep into crucial topics, including the causes, treatments, accurate diagnosis, and offer comprehensive support plans encompassing emotional, cognitive, financial, and medical care advice.
Currently, 150 million people are already affected, facing stigmatization, frequent misdiagnoses, and a lack of appropriate care.
Our podcast sheds light on a range of dementia types, from Alzheimer's to FvAD, FTD, and Vascular dementia, giving a voice to those who often go unheard.
Stay connected with us on all major social media platforms, and feel free to reach out directly if you have feedback or wish to participate in an upcoming episode!
If you are impacted…
My name is Stephan Tual. For seven harrowing years, my mother battled FTD/PPA, a misunderstood sub-type of dementia. Like many, due to the stigma associated with the illness, my mother hid her diagnosis and so it extremely well.
The day the police called me to report she had rammed her vehicle into a public bus due to her deteriorating mental health, I dropped everything, quit my job, moved countries and dedicated every waking moment to her care.
It was a difficult but very rewarding journey. I connected with carers, associations, doctors, patients, their families, their care homes and even funeral home directors. I quickly realized this illness was not what the media depicted.
My mother was a nurse who cared for children with terminal illnesses. When she passed in October 2023, I found myself having spent all my savings on her care. But I know my mother wouldn’t want me to quit. So, I created Memory Moves. The journey continues this time by helping others by raising awareness and talking openly about very difficult topics rarely addressed in the media.
My mother was everything to me, and I have no regrets whatsoever about dropping everything, career and all, to focus on her care & cognitive stimulation therapy. I understand, however, that not everyone is able to dedicate themselves to their loved ones 24/7. This is why we need a sea-change in in attitudes, treatment, and monitoring to impact what can only be described as a looming humanitarian disaster.
You may not realize it, but by simply informing yourself of this condition, you are already making a difference. Thank you!
