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Dementia Demystified: Confronting Confusion and a Call for Change - The Dementia Podcast EP1
The key to overcoming the stigma and division surrounding dementia is by talking about it openly.
TDP is 100% by and for the community! We want to hear from you! If you'd like to testify as a carer, family member or if you are affected by dementia, please reach out.
In our first vlog, I share my personal insights, tackling three major misconceptions about dementia:
1. Too many have been misled to equate Alzheimer with dementia, when Alzheimer's is just ONE part of the broader dementia spectrum. I wanted to stress the importance of getting accurate diagnoses while understanding subtypes.
2. It might not be fashionable, but I call out the often inadequate care in nursing homes, where, despite polished facades, isolation and neglect are far too common. 1-1 care is the only way forward for effective CST. I bring the receipts with video evidence.
3. It is important to challenge the oversimplified view of dementia as just "forgetfulness", to shed light on the deeper cognitive and emotional struggles faced by those living with it.
I know the tone is uncommon. But to raise awareness about a condition that will impact 1 in 2 viewers in one capacity or another (carer, patient, or both), I believe a RADICAL change in how we approach awareness campaigns is needed.
Let's break the law of silence and underline the urgency of this crisis, advocating for more empathy and collective action. Now is the time to better support those affected and their caregivers as the ad-hoc caregiving industry is approaching breaking point.
This shouldn't just be me talking at you. I'd love to feature your voices, stories, and perspectives on my podcast. Whether you want to share a testimony, express a disagreement, or just chat, feel free to PM me on any of the social platforms below, or use the substack chat.
Voice & text support for carers : https://discord.gg/XBFxQYds5a
Reddit (evidently :)) - https://www.reddit.com/user/memory_moves/