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Coming soon: Memory Moves
For 7 years my mother battled FTD/PPA, misunderstood sub-types of dementia. The fight was harrowing and she was unrecognizable at the end, 100% paralyzed, incontinent, and aphasic. Faced with losing her dignity, she fought until her last breath. I'm so, so proud of you, Mum. ❤️
My mother was everything to me and I have no regrets whatsoever about dropping everything, career and all, five years ago to focus on her care & cognitive stimulation therapy.
In her memory, I am starting an organization, “Memory Moves” to:
Offer CST to patients isolated in care homes, providing 1-1 support love, and care to the patients most affected by isolation, away from family, friends, and the activities they held dear.
Bridge the gap between the research and potential treatments that could alleviate the patients’ suffering and anxiety, and turn it into practical applications with real-world results.
Shatter the stigma around this illness which prevents so many from getting the care they need.
Support care homes in employing transformative support technologies that is also respectful of patient privacy and dignity.
This will be a long journey, but cannot think of a more rewarding one. We are currently working with care homes & carers, and gathering feedback from families to prioritize our actions.
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